Here are some parts of the email that I received from Dawn today.
"The last few days have been very busy and tiring. I cant remember when I
updated last so I will review. Monday morning he had a swollow study to
determine if he would asperate when eating....he did fail the first two
tries but passed the third. Basicly it means he can have milk by mouth and
bottle if it is thinkened. The Ocupational Therapist called it "honey"
consistancy. We are being taught how to give him a bottle and mix it
properly."
"Yesterday was a very busy day with Dr.s and nurses and such...they moved us
to the CV East. WE ARE OUT OF ICU!!!!! Last night was the first night to
be with Gabriel all night. I slept a total of 3 hours. He eats every 3
hours, gets his diaper changed (which he hates), and it takes about 30 min.
to 45 min to calm him down after his diaper changed. He gets very unhappy
and his resperation is high. We are learning more about him...his
sounds....his personality. Our specific prayer request is for wisdom and
courage to know how to care for him. We are very nervous about his special
needs and our ability to care for those needs. Although the Drs and Nurses
are very supportive...they are teaching us to do more for him. He may be
sent home on a NG tube plus the bottle. As he gets stronger the NG can be
removed.
Please pray for us as we near the end of our stay here...we may still be
here for a couple more weeks...all depends on Gabriel and Mom and Dad's
abilities.
We do know that life for us has changed. We will be needing to stay home
more and for Gabriel's health, have limitied exposure to the world. He
still needs time to heal and his ability to fight infections is severly
deminished."
"On a more personal request....I am having some complications from the
delivery. I will have to wait till we go home to see the Doctor for myself.
Please pray for my healing as well."