FROM DAWN:
We are now in the Cardiac step-down
unit of ACH. We still have a long way to go but most of the critical stuff is over. We have spent the last few days learning to feed Gabriel through a feeding tube, dress his wounds, mix his milk so that it is a motor-oil consistency, take his pulse-oxygen level, crush his medicine and thicken it, and CPR in the cases where he may aspirate. As over-whelming as it is, we are eager to learn so that we can go home.
The doctors have not given us a date specifically that we can go home, but they indicated a lot would depend on how well he improves this weekend. Currently he struggles to get 30 out of 50 ccs of his thickened milk before wearing out, and that is just for 3 of his 8 feedings. If he is to go home on the bottle he needs to progress to 50ccs by bottle for all 8 of his feeding. The other option is a smaller surgery to put a more permenant feeding tube in his belly. The doctors are not eager for this and are trying to evalute the delay another surgery would create verses how long it will take him to learn to do all his feedings by mouth.
Please continue to pray fo us.
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